The twins are now 15 months old. They are both incredible, and I'm head over heals in love with my kids. For a while, we have been concerned about Sebastian. He was having a lot of issues with eating and growth. He was throwing up 2x a day and not gaining any weight. Drs called it failure to thrive. I was a nervous wreck. I was so worried about him getting nutrients, and every time he'd eat, he'd throw up. It was awful. We eliminated milk and he's like a new baby. He's still tiny and not growing, but he's happier and learning more and more. We have been to a GI specialist and a Genetics Specialist. We have received the diagnosis that Sebastian has a form of Primordial Dwarfism called Russell Silver Syndrome. It feels strange to write those words... "Primordial Dwarfism". I've been so far removed from "little people" and never would have guessed that my son would be a little person. Honestly, I'm just happy that we got his feeding under control. Yes, my child is tiny when he's around other kids. But for some reason, I'm not worried about him. I guess I know worrying won't help. And I love him so much as he is, I wouldn't want to change him. I just want him to always feel proud of who he is. I want to make sure the world always treats him right. I'm so grateful that he is a twin. I know Dani will always be by his side, always be his friend and never let others judge him based on his size.
Although there are 4 of us, I keep thinking of the Three Musketeers... "All for One and One for All." That is who we are. If Sebastian has obstacles in life, we'll all be supporting him. We share in each others obstacles and we share in each others triumphs!
Sebastian and Daniela... you have inspired me since the day you arrived in this world at 2 and 3 lbs. Keep inspiring me with your amazing characters and personalities. I love you always and forever.
